I was at the Movement Disorder Clinic in Winnipeg today to see my DBS (Deep Brain Stimulator) technician, and got a little lecture about not making the most of the technology that they put in my brain. Her job is to adjust the settings and the parameters that I have access to with my remote. My job is to experiment within those parameters, and then report back the results.
I do keep a medical journal, and you would think that since I spend most of my waking hours at this computer, that I would be more disciplined with updating my status a few times a day, but if you thought that you would be wrong.
How do I feel? Is the medication helping? Is the DBS helping? I know that I am the only one with the answers to those questions, so why are they so hard for me to answer?
It seems like I have been living with these symptoms for so long that they are normal to be. Not that they are not painful and debilitating, but I have just become accustomed to them. Like the saying goes: "You can get used to wearing a twenty pound sack on your back, but it still weighs twenty pounds." That reminds me of my purse...